Category Archives: General Support

Used for all posts about non medical topics.

Support Meeting 9th February 2019

The local association held its regular support meeting on Saturday 9th February at Thanington Neighbourhood Resource Centre Canterbury.

The meeting was well attended by those living with MND, their carers, association volunteers and friends.

We learnt about the role of Association Visitors, how they can support people with MND and their carers/families. 

We also learnt about the role of a trustee of the national MND association. How it was important to support research via funding and to constantly highlight to MPs and the wider media the difficulties and frustration that people with MND have in accessing benefits.

Clive, the local association chairmen gave an update on monies recently raised. He also spoke about how the local association spent its funds.

One of the issues discussed was how to access priority services with the major utility companies, such as being able to have an emergency electrical supply during power cuts so that ventilators will still work.

A variety of  homemade cakes were enjoyed by those present.

Fabulous Christmas Lunch

We had 53 diners at our annual Christmas Lunch at the Yarrow Hotel, Broadstairs on Saturday 8th December.

Diners waiting for the first course to be served

We had an excellent meal, beautifully served by the staff of the hotel, who as ever were excellent.

During the course of the lunch Katy Styles MNDA Trustee awarded a 25 year award to Hazel Izzard (Watts) for her service to MNDA in East Kent over the past quarter century.  Hazel has retired from our group  and we gave her a beautiful bouquet in recognition of the incredible work she has done to support people living with MND in East Kent.

Hazel and Katy with Certificate
Hazel with bouquet of flowers

As in previous years we had a superb raffle, with prizes being bought along by many diners and we had lots of fun drawing the raffle and the children present certainly had fun collecting various prizes.

Raffle prizes

We would like to thank the Yarrow Hotel and their wonderful staff, all raffle donors and everyone who attended for making it such a splendid lunch.

We wish everyone a wonderful Christmas and a good 2019.

AGM Conference at East Midlands Airport, Derby 13/14 th July 2018

The MND Association AGM was extra special for me this year as it makes a full year since I was nominated to be a trustee for the Association.  I have now done a full round of Board Meetings, Committee meetings and project task group meetings.  

Why go to the AGM? 

The AGM is a place to meet up with old and new friends, other volunteers and staff from our MND community, together with exhibitors and speakers.

I find that there is always something new to learn, whether it is from another Branch or Group, or finding out about the research being done, or the equipment on offer. One big hit was the virtual reality headsets which Mark, my husband tried out. One was a general virtual reality demonstrating all of its features including being in a helicopter, in a hot air balloon and giving lots of different views and landscapes. He particularly enjoyed the car racing around the Le Mans circuit. 

I attended a workshop around Legacy Fundraising which was one aspect of the Association’s work that I knew little about. 

Even if you can’t attend to you can follow the event Live on Facebook and it is always nice hearing the messages read out from those back at home, watching the event unfold. Here’s the link to this year’s AGM and research speech. https://www.mndassociation.org/videos/

The afternoon speaker was Professor Martin Turner who was there to speak about his bio -marker research at Oxford. Something close to my heart. I have been part of that research, sitting in multiple scanners for many hours as a healthy control for Professor Turner’s research. I was very interested to hear how that particular research was going.  

I always come away thinking how much the Association has done in the previous year, as highlighted by the Impact Report and I am always grateful to our many supporters, fundraisers, volunteers, campaigners and staff who all help get us there. The Impact Report is here https://www.mndassociation.org/about-us/a-strategic-framework-for-the-future/impact-report/

 Next year maybe I’ll see you there.

Katy Styles, Trustee MNDA and MNDA East Kent

KM Dragon Boat Races

On Sunday 1st July, MNDA East Kent entered a team in the KM Charity Group Dragon Boat Race. Our team was made up of members of the Lawrence family from Folkestone. The team were entered into three races, impressively winning two and coming second in the third race.

In our final race, we were pitched head to head with the team from MNDA Mid Kent,   who were the fastest team on the day.  It was a very close race, we managed to beat Mid Kent but due to their faster times in earlier races they went through to the finals. Congratulations to the team of MNDA Mid Kent!

Dragon Boat Race

MNDA East Kent has entered a team into the Dragon Boat Race at Mote Park Maidstone on July 1st 2018.

Our team will comprise of up to 17 members and will row at least 3 x 1000 metre races. The team competed last year winning both races they entered and we look forward to greater success in 2018.

We will  be holding a support picnic for our members and members of the other Kent Groups. We hope there will be a great turn out to support us and enjoy a great picnic in we hope, glorious weather.

We hope to raise some funds from this day out and ask anyone who wishes to support our efforts to visit https://www.justgiving.com/fundraising/dragonboatrace-eastkent and donate what you can.

Huge thanks from the MNDA East Kent Dragon Boat Team and to all our supporters.

Pearson Whiffen 5-a-side Football Competition

Kent Company Pearson Whiffen Recruitment are running a 5 a side Football tournament on Saturday 2nd June, starting at 8.30.  All proceeds from the day will be shared by the Kent Branches of MNDA.

To enter a team please contact Rob at  rob@pearsonwhiffen.co.uk 

We are looking forward to a fabulous day attending this event and hope to see many of our supporters on the day.

Grateful thanks to Pearson Whiffen Recruitment Ltd. for selecting MNDA to be the charity to benefit from this competition.

Spring Lunch 2018 – 28th April

Our Spring Lunch will be held at The Yarrow Hotel, Ramsgate Road, Broadstairs on Saturday 28th April starting at 12 noon.

This will be our 5th Spring Lunch and we expect it to as enjoyable as previous years.

The cost is £13.50 for a 3 course meal.  People living with MND and their carers come as our guests without charge.

You can download a copy of the booking form here http://mnda-eastkent.org.uk/pdffiles/SupportLunch2018.pdf 

We look forward to receiving your booking and to seeing you on the day.


Fabulous Open Meeting Saturday 17th February

The East Kent Group met on Saturday for an open meeting for people living with MND, their carers, friends, family and volunteers.

We had 23 attend in all and we had the honour of a visit from Councillor Colin Spooner The Sheriff of Canterbury, who addressed the meeting. Huge thanks to Colin for making the time in his busy schedule to visit with us.

Other contributors were Chairman Clive Hudson who spoke briefly about fund raising plans; Judy Keay who spoke about our Association Visitors; Lynn Hudson who spoke about our monthly Tea by the Sea meetings and finally Katy Styles who updated us on current campaigning activity.

We enjoyed sandwiches and cake prepared by the committee members and lots of warm hearted and friendly conversation.

In all a great meeting.