Category Archives: General Support

Used for all posts about non medical topics.

Support Meeting 14th October Thanington, Canterbury

We had a good attendance at our latest monthly support meeting which was held at Thanington, Canterbury on October 14th.

We heard a presentation from Dawn Cockburn and Julie Murby of the Harmony Therapy Trust.  A charity who provide NHS approved therapies to patients living with life limiting or debilitating diseases, including MND.

Dawn Cockburn addressing the meeting

We heard that Harmony Therapy Trust is run entirely by volunteers.  The charity is based on the Isle of Sheppey however, they have expanded their services to cover the whole of Kent.

The charity can provide up to 6 sessions of therapy to persons who would be expected to benefit from the therapy.  Therapies are only provided following medical referral.

Harmony Therapy Trust can provide a range of therapies including acupressure, aromatherapy, counselling/talking therapies, healing/reiki, holistic massage, hypnotherapy, ibx nail treatment, indian head massage, osteopathy, reflexology and reflexology lymphatic drainage.

We would like to thank Dawn and Julie for an excellent presentation.  You can find out all about the Harmony Therapy Trust at their website http://theharmonytherapytrust.org.uk

Should you feel you might benefit from a therapy provided by Harmony Therapy Trust, please contact a medical professional such as your doctor or MND nurse who will need to complete the application, which can be found here http://theharmonytherapytrust.org.uk/files/5314/9949/9161/2017_REFERRAL_FORM.pdf

Clive with the two awards

During the meeting we were able to exhibit the KM Charity Mark earned by MNDA East Kent for 2017. The Charity Mark was presented to 50 local charities who have made a substantial contribution in Kent.

Clive Hudson was also awarded a Brain and Brawn Triathlon Award for participating in a minimum of 3 KM Charity Team events in 2017, raising money for the MNDA in East Kent.

Tea by The Sea

Our first Tea by The Sea was held at the Botany Bay Hotel, Kingsgate, Thanet on Wednesday 28th September.

We had six people present 3 of whom had not previously attended one of our meetings.

We enjoyed a good chat with tea and scones and all present were agreed the idea of a local meeting held monthly was a good idea,  especially as they felt unable to travel to other meeting held further away in Kent.

Lynn Hudson, Christine Rawlins, John Rawlins, John Sturges, Clive Hudson, Philomena Lawrence.

Tea by The Sea is on the last Wednesday of October (25th) and November (29th) at the Botany Bay Hotel, Kingsgate at 3pm.  At the  November meeting we will review our plans for 2018.

Support Meeting Tea at Strode Park Foundation

We were invited on Sunday August 6th to visit Strode Park Foundation for tea and a walk around parts of the house and the grounds.

There were 12 of us attending and we enjoyed a fabulous tea of sandwiches, scones with jam and clotted cream and a selection of cakes.

John Cotterill addressing our group.

The sandwiches, scones and cakes were prepared at Strode Park by ??, all were beautifully fresh and delicious.  The tea was served by Anthony who thoroughly spoiled us.

We were shown around the grounds, Daren found a lake with a no fishing sign, which indicated to him there would be something worth catching.

The open air auditorium is a fantastic facility with every part accessible by wheelchair, we were invited to look at the website Strodeparkfoundation.co.uk to find out about concerts and booking them if we wished.

We were shown around non residential parts of the house, including the gymnasium and the hydro therapy pool, which is available to people living with disabilities including MND.

Daren looked up to catch this image of our group – most of us missed it!!

Huge thanks to John Cotterill who showed us around and to ?? and Anthony for making the tea so special.

We have been invited to have tea at Strode Park at some future date and we are welcome to attend any public events held at the Foundation.

 

 

Support Meeting – Flying Horse Boughton Aluph

Following a fabulous meeting at The Flying Horse, last November.

We will have our next support meeting at this superb venue, on Saturday 11th February.?? The meeting will start at 11.00 and run until 13.00.

The Flying Horse, The Lees, Boughton Aluph TN25 4HH.

Full details?here?and??Directions here.

The Flying Horse has an excellent restaurant if anyone wishes to stay and enjoy lunch.

Bill Ashby RIP

William Ashby? 15/04/51 -21/11/16.

The funeral was held for William Ashby (affectionately known as Bill, or Pussy- Cat-Willum)? on 9th December 2016 at Charing Crematorium. His wife Peta and their children attended as well as many, many friends and family?the hearse was a wonderful old blue painted Chevrolet, his coffin?placed on the flat bed of the truck, was made by members of his family and lined with silk . The entourage of vehicles following the hearse included many vans from his business, and splendid Harley Davis out-riders.

The service was moving and intimate, with shared memories and reflected the very real sense of fun about this delightful man. There was subsequently a gathering at Little Silver Hotel in Tenterden attended by many of his family, friends, and colleagues.

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Follow this link to see the burning rubber send off https://www.facebook.com/royashmr2/videos/10154667174961101/

 

Group Correspondent required for MNDA East Kent

We need someone to act as our group correspondent, to respond to queries and direct emails to the appropriate member of our committee.

If you have the skills to send out agendas, take notes of meetings send out minutes, and a few hours you are willing to spare, we would love to hear from you.

Our meetings take place every other month in Canterbury.? The duties would be sending out agendas by email, attending meetings which last 2 hours and sending out minutes of those meetings by email.

Please email chair@mnda-eastkent.org.uk?or telephone 01843 579941.

You can view our web site at www.mnda-eastkent.org.uk to see what activities we are involved in.

Our main web site can be viewed at www.mndassociation.org

Thank you for reading, we hope to hear from you.

 

 

2016 in review.

2016 has been an interesting and successful year for MND Association East Kent Group.

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Campaigns Contact volunteers Greg Broadhurst (Manchester Branch), Colin Hardy (Northumberland Group), David Setters (East Surrey Branch) and Katy Styles (East Kent Group) were joined by Helen Setters and Mark Styles at the lobby.

The year started with a party at the Wrotham Arms in Broadstairs, followed in very short order by a Support meeting in Folkestone and a visit to Westminster where 6 people affected by MND addressed some 42 Parliamentarians.

Young Carers Awareness Day was also in January, which was followed by the Burns Night Supper at BinElla in Faversham.

Mark and Katy Styles spoke to the Psychology Society at the University of Kent on Tuesday 23rd February.

Campaigning Toolkit

 

During April The Campaigning Toolkit, the brainchild of East Kent’s?Katy Styles was launched, A Masquerade Dinner in Tenterden raised almost ?10,000 and the?South Coast Road?Trip tee shirts went on sale, together with announcements of the events in East Kent.

A brilliant Spring Lunch was held in May and the press release for the South Coast Road Trip was sent to all media outlets.

June was the month of the South Coast Road Trip with 19 events in 17 days as Clive and Lynn Hudson travelled by public buses from Broadstairs to Land’s End, raising over ?10,000 and also creating great awareness of MND in the process.

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Sally Light with Signed T Shirt
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Herne Bay Clock Tower

The Clock Tower in Herne Bay was lit up with MND colours and MND awareness day and The Podplus 5K run was yet again a success was a successful run raising funds for MND in East Kent.

Campaigning were busy at Parliament for a Carer’s Week Reception representing pwMND and their carers.

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Daren with enormous carp

In August Summer was in the air with great music at the Broadstairs Summer Hop at The Pavilion, which followed on into the evening at the Wrotham Arms.? Daren Edwards was catching enormous fish in France and the signed road trip shirt went on display at David Niven House.

Katy Styles addressed The National Council for Voluntary Organisations (NCVO)? Campaigning Conference on September 3rd, being the only volunteer to address the meeting.? On the same day Judy Keay attended Project Respect, which?is the MND Association?s Equality, Diversity and Inclusion Strategy ? and?all members are encouraged to help shape it.

Clive Hudson, Mark? and Katy Styles attended the annual conference of the MND Association held in Derby on Saturday 10th September.? Please see http://mnda-eastkent.org.uk/wordpress/?p=1849 for full details.

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Anne Pomeroy

Anne Pomeroy walked 100KM along the Thames raising ?1650.93 for MND Association East Kent.

The Co-op run from River to Mill Hill was on 30th September.? The run followed the diagnosis of MND given to local lady Linda Clarke.? The run raised over ?1000 for MND. See http://mnda-eastkent.org.uk/wordpress/?p=1876 for more information.

We held a volunteer recruitment day in Canterbury in early October, the event was an interesting experience and we learned much about how to present any future recruitment day. Unfortunately it was a foul day and we were not successful in gaining any new volunteers.

Judy Keay, Chrissie Batts and Mark and Katy Styles attended a Parliamentary Reception on October 18th, representing the East Kent Group.

Katy Styles, Mark Styles, Julian Brazier MP, Chrissie Batts & Judy Keay
Katy Styles, Mark Styles, Julian Brazier MP, Chrissie Batts & Judy Keay

They all spoke with?Julian Brazier, MP for Canterbury and Whitstable who attended and promised to follow up the points made at the reception, and other MP’s at the reception. ?Mark and Katy also spoke to the Minister, Penny Mordaunt about their concerns .

During November we were encouraging people to complete a survey about the financial impact of MND further information http://mnda-eastkent.org.uk/wordpress/?p=1898

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Christmas Lunch

Our year ended by funding the installation of a hoist for Martin living with MND, making a contribution to our CEO annual appeal and enjoying a wonderful Christmas Lunch at Yarrow Hotel in Broadstairs.

 

 

 

Apologies for any errors or omissions please contact webmaster@mnda-eastkent.org.uk