The East Kent Group
Is one of over 90 groups around the country offering support and help to those affected by Motor Neurone Disease. Our group offers help to people affected by MND in East Kent.
We provide advocacy and advice to those with the disease and also their carers. The main activities of the group are fund raising to provide support and services, fund raising to aid research and campaigning to raise awareness of MND.
The group supports professional staff in the NHS and Kent County Council, enabling them to get needed services and equipment, without the need for extensive bureaucracy.
The funds we raise help to provide equipment and support, both for those living with the disease and their carers. Some of the funds we raise also go towards research in the quest to find a cure for this currently incurable disease.
All of our members are volunteers and we work closely with professionals from the NHS and Kent County Council, to provide assistance on a timely basis, with the minimum of bureaucracy.
We are always looking for new volunteers and should you feel able to offer a few hours a week to support our efforts, we would be delighted to hear from you. Please contact our chairman or should you be outside of our area, please contact Claire Tuckett our Volunteering Development Coordinator.
If you wish to talk to someone about any aspects of MND or Kennedy’s Disease please call MND Connect on 0808 802 6262, or email email@example.com.
Please Note We cannot provide either medical or emergency care. Should you need such care you should contact your MND Specialist Nurse (Mon-Fri 8.30- 17.00), your doctor, or if you have registered with your local hospice, you may wish to contact them. In an emergency call 999.
To download details of East Kent MND Multi Disciplinary Team http://www.ekhuft.nhs.uk/EasySiteWeb/GatewayLink.aspx?alId=244776
A world free from MND.
We improve care and support for people with MND, their families and carers.
We fund and promote research that leads to new understanding and treatments, and brings us closer to a cure for MND.
We campaign and raise awareness so the needs of people with MND and everyone who cares for them are recognised and addressed by wider society.
People with MND, their families and carers are at the heart of everything we do.
We collaborate, and value everyone’s contribution.
We achieve excellence through personal commitment and ongoing improvement.
We respect and respond to people’s diverse needs, backgrounds and views.
We achieve our aims through building open and transparent relationships.
The MND Association was founded in 1979 by a group of volunteers with experience of living with or caring for someone with MND. Since then, we have grown significantly, with an ever-increasing community of volunteers, supporters and staff, all sharing the same goal, to support people with MND and everyone who cares for them, both now and in the future. We are the only national charity in England, Wales and Northern Ireland focused on MND care, research and campaigning.
About MND – Key Facts
If you require more information on the statistics below, please contact the MND Association’s communications team: firstname.lastname@example.org
MND is a fatal, rapidly progressing disease that affects the brain and spinal cord.
It attacks the nerves that control movement so muscles no longer work. MND does not usually affect the senses such as sight, sound, feeling etc.
It can leave people locked in a failing body, unable to move, talk and eventually breathe.
It affects people from all communities.
Some people may experience changes in thinking and behaviour, with a proportion experiencing a rare form of dementia.
It kills a third of people within a year and? more than half within two years of diagnosis.
A person’s lifetime risk of developing MND is up to 1 in 300.
Six people per day are diagnosed with MND in the UK.
It affects up to 5,000 adults in the UK at any one time.
It kills six people per day in the UK, this is just under 2,200 per year
It has no cure.
We are the only national charity in England, Wales and Northern Ireland focused on MND care, research and campaigning.
Around 3,500 people with MND use an Association funded care centre, this is approximately 70% of those with the disease.
Over 7,000 people give their time to volunteer and fundraise on our behalf. This includes our Association Visitors who provide information and one to one support to people with MND.
We have over 9,000 members helping to strengthen our voice to ensure everyone with MND has access to the best possible care.
Our 89 volunteer-led branches and groups provide local support to people with MND, their families and carers. A growing number also hold separate support meetings for carers.
We employ around 170 staff, whose specialist skills and knowledge are dedicated to improving the lives of people affected by MND.
We support hundreds of health and social care professionals who provide and manage services for people with MND.
We work with and support scientific and clinical research communities in the UK and worldwide.
Almost a thousand delegates attend our annual research conference: the International Symposium on ALS/MND.
We lobby the Government in London, the Welsh Government and the Northern Ireland Executive to ensure national policy reflects the needs of people affected by MND. We also campaign in coalition with other charities, through the Care and Support Alliance, the Association of Medical Research Charities, MND Scotland and others.
We are an active member of the International Alliance of MND/ALS Associations.
We have around 26,000 ‘likes’ on Facebook and over 20,000 Twitter followers (Nov 2015).
Making A Difference
We will do all that we can to enable everybody living with MND to receive the best care, achieve the highest possible quality of life and to die with dignity.
For further information on the work of the MND Association:
Telephone: 01604250505 Fax: 01604 624726/638289Email: email@example.com
To request printed copies of our latest reports please email firstname.lastname@example.org
If you would like to make a complaint, please refer to our Complaints Policy
Registered Charity No. 294354Registered Office: David Niven House, 10-15 Notre Dame Mews, Northampton. NN1 2BG.
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