Support Meeting 14th October Thanington, Canterbury

We had a good attendance at our latest monthly support meeting which was held at Thanington, Canterbury on October 14th.

We heard a presentation from Dawn Cockburn and Julie Murby of the Harmony Therapy Trust.  A charity who provide NHS approved therapies to patients living with life limiting or debilitating diseases, including MND.

Dawn Cockburn addressing the meeting

We heard that Harmony Therapy Trust is run entirely by volunteers.  The charity is based on the Isle of Sheppey however, they have expanded their services to cover the whole of Kent.

The charity can provide up to 6 sessions of therapy to persons who would be expected to benefit from the therapy.  Therapies are only provided following medical referral.

Harmony Therapy Trust can provide a range of therapies including acupressure, aromatherapy, counselling/talking therapies, healing/reiki, holistic massage, hypnotherapy, ibx nail treatment, indian head massage, osteopathy, reflexology and reflexology lymphatic drainage.

We would like to thank Dawn and Julie for an excellent presentation.  You can find out all about the Harmony Therapy Trust at their website http://theharmonytherapytrust.org.uk

Should you feel you might benefit from a therapy provided by Harmony Therapy Trust, please contact a medical professional such as your doctor or MND nurse who will need to complete the application, which can be found here http://theharmonytherapytrust.org.uk/files/5314/9949/9161/2017_REFERRAL_FORM.pdf

Clive with the two awards

During the meeting we were able to exhibit the KM Charity Mark earned by MNDA East Kent for 2017. The Charity Mark was presented to 50 local charities who have made a substantial contribution in Kent.

Clive Hudson was also awarded a Brain and Brawn Triathlon Award for participating in a minimum of 3 KM Charity Team events in 2017, raising money for the MNDA in East Kent.

KM Charity Forum

Mark Styles receiving The Gold Charity Mark from Barbara Martin

The Kent Messenger Charity Group held their annual forum at The Mercure Great Danes Hotel in Maidstone on Friday 13th October.  The forum recognised work of charities and schools for their hard work and dedication.

Mark styles attended from The East Kent Group of MNDA, who are  the Kentish Gazette Charity of the Year 2017.

Mark Styles collecting an award on behalf of Clive Hudson from Barbara Martin

MNDA East Kent was awarded A Gold Charity Mark Award, which was received on our behalf by Mark Styles.

Mark also collected a Brain and Brawn Triathlon Award on behalf of Clive Hudson, who for health reasons was unable to be present on the day.

Mnda East Kent would like to thank KM Charity Team and the KM Group for all the support we have received during 2017 as Kentish Gazette Charity of the Year.

Clare Rozier starts her silence Tonight, at 7pm

On Sunday 15th October at 7pm until Tuesday 17th at 7am I will be doing Silence Speaks in memory of my amazing Dad (David Ironmonger).

David Alan Ironmonger

My dad was such an amazing man, always smiling, loved life and everybody loved him. In 2016 Dad was diagnosed with MND, which was a great shock to himself and the family. Over the year Dad lost control of his legs, arms, couldn’t feed himself, and it got so exhausting for him to talk. He had carers 3 times a day to hoist him out of bed, wash, shave, brush his teeth, etc. 

My Mum, Brother,  Husband and myself  would also help with his care. We would take him out in his electric chair and mobility car so he could enjoy the places he loved to go and see. My dad was so brave and battled through this cruel time and would always be smiling. 

Sadly on July 16th 2017, Dad lost his battle to this cruel disease. Myself, brother and my mum were all by his bedside when he died, and he would still try and smile right to the end. 

I miss my Dad so much and think about him everyday.  

I am doing this as I have a CHOICE too.. My Dad Never had a CHOICE. 

I would love to be able to help someone else with MND by raising money. 

I so wish there was a cure for this wicked and cruel disease.

Please support me by visiting www.JustGiving.com/clare-rozier1 donating what you can afford to help people living with MND. 

Thank you for reading and huge thanks to all donors.

Clare Rozier

To find out more about Silence Speaks please visit https://www.mndassociation.org/get-involved/fundraising/doyourownthing/silence-speaks/

Tea by The Sea

Our first Tea by The Sea was held at the Botany Bay Hotel, Kingsgate, Thanet on Wednesday 28th September.

We had six people present 3 of whom had not previously attended one of our meetings.

We enjoyed a good chat with tea and scones and all present were agreed the idea of a local meeting held monthly was a good idea,  especially as they felt unable to travel to other meeting held further away in Kent.

Lynn Hudson, Christine Rawlins, John Rawlins, John Sturges, Clive Hudson, Philomena Lawrence.

Tea by The Sea is on the last Wednesday of October (25th) and November (29th) at the Botany Bay Hotel, Kingsgate at 3pm.  At the  November meeting we will review our plans for 2018.

Help us to help others!

If your family or your friends have ever been affected by motor neurone disease, please help us to help other families living with this terrible disease.

We need people willing to help in many ways, from joining our committee planning for the future, running fund raising events, helping with social media, helping with our web site or helping out at our events.

Whatever your skills we can you them.  Please contact Clive Hudson by email  chair@mnda-eastkent.org.uk or if you live outside of East Kent please contact Claire Tuckett by email claire.tuckett@mndassociation.org

Thanks you for reading this request and we hope to hear from you soon.

 

 

Awareness raising at Dover College

On Monday 9th October I attended morning assembly at Dover College to talk about motor neurone disease and the MNDA.

The college had lost a much loved member of staff to MND and the students have decided to support MNDA through the school year and many events are planned.

The presentation was about MND/Kennedy’s Disease, and how the MNDA supports people and families affected by these diseases.

The presentation focussed on the celebrities the student might know of,  who support MNDA such as Professor Stephen Hawking, Benedict Cumberbatch, Charlotte Hawkins, Eddie Redmayne and Stuart Broad.

Also featured were inspirational people living with MND/Kennedy’s Disease, who do everything they can to raise awareness of MND and to raise funds for MNDA.  People like Mark Styles who was instrumental in getting Kent County Council to be the first council to sign the MNDA Charter, Jason Liversedge who despite being in a wheel chair managed to ascend Snowdon and also to abseil off the Humber Bridge and EyeGazeArtist, Sarah Ezekial who creates wonderful works of art using only her eyes.

Thanks to students and staff at Dover College for supporting MNDA and we look forward to hearing about your future activities.

Clive Hudson

Charity notice board at Dover College

In Memory of David Alan Ironmonger

David Alan Ironmonger

 

RIP David Alan Ironmonger born 19th September 1944, sadly died on 16th July 2017.

David’s family and friends donated £600 to Motor Neurone Disease Association in East Kent in memory of David.

The East Kent Group wish to thank everyone who donated.  The money will be used to support people living with MND, their carers and families in East Kent.

Support Meeting Tea at Strode Park Foundation

We were invited on Sunday August 6th to visit Strode Park Foundation for tea and a walk around parts of the house and the grounds.

There were 12 of us attending and we enjoyed a fabulous tea of sandwiches, scones with jam and clotted cream and a selection of cakes.

John Cotterill addressing our group.

The sandwiches, scones and cakes were prepared at Strode Park by ??, all were beautifully fresh and delicious.  The tea was served by Anthony who thoroughly spoiled us.

We were shown around the grounds, Daren found a lake with a no fishing sign, which indicated to him there would be something worth catching.

The open air auditorium is a fantastic facility with every part accessible by wheelchair, we were invited to look at the website Strodeparkfoundation.co.uk to find out about concerts and booking them if we wished.

We were shown around non residential parts of the house, including the gymnasium and the hydro therapy pool, which is available to people living with disabilities including MND.

Daren looked up to catch this image of our group – most of us missed it!!

Huge thanks to John Cotterill who showed us around and to ?? and Anthony for making the tea so special.

We have been invited to have tea at Strode Park at some future date and we are welcome to attend any public events held at the Foundation.