The third Coastal walk to D’Feet MND took place on Saturday
May 18th. There were three walk
A long walk (approx. 24 miles) Whitstable to
A medium length walk (approx. 13 miles) Minnis
Bay to Broadstairs.
A short walk (approx. 6 miles) Margate to
Some 60 walkers walked on the day. The weather was fair and the walk most
enjoyable. The walkers from Whitstable
started at 7.30 am, those from Minnis Bay at 11.30 and the final group from Margate
All walkers finished at the Wrotham Arms, Ramsgate Road,
Broadstairs, between 2 and 4.30pm. Medallions were presented to all walkers who
completed their walk.
Adrian Powell made a brief speech of thanks to all walkers,
the organisers and of course our sponsors.
Refreshments were provided by the Wrotham Arms and excellent
they were, thanks to Jackie and her team at the Wrotham Arms. Soothing drinks were also enjoyed from the
As of June 12th, the Walk has raised £6,500 including gift aid. A fantastic result which means over 3 years we have raised over £25,000 to support people living with MND in East Kent and contribute towards research for a cure for this devastating disease.
As a direct result of our walk in 2018, MNDA East Kent have been able to fund the purchasing of a piece of equipment to allow the respiratory nurse to be mobile in the MND clinic at William Harvey Hospital in Ashford. This will make life much easier for patients with MND visiting the clinic.
We will be announcing details of installation on our web site, when the equipment is installed.
Huge thanks to our sponsors Greenwich Kitchens and Premier Signs
and Graphics; to The Wrotham Arms; to all walkers; to everyone who collected
sponsorship, and everyone who gave generously.
The Wrotham Arms in Broadstairs has been a fantastic
supporter of MNDA East Kent for several years.
The Wired New Year’s Day Jam, which featured many local musicians, and prizes donated by various people, with a special mention to Hornby for their generous donation, raised the fabulous sum of £960.30. The main contributor being the raffle, but also sales of the Fairholt album and some £70 from the collection box.
More recently on 14th April Lodestone, Flame
Pilots and Spyplane played in the afternoon.
Ben Mills and Robert Jarvis performed in the evening, great fun was had,
and a raffle raised some £310.00.
The Wrotham arms has now raised over £6,000.00 for MNDA East Kent, since the 1st Jan 2016. Thanks to Jackie and her staff at the Wrotham Arms, thanks to all the musicians who have played at various functions, thank to all organisers and finally thanks to all the customers at the Wrotham Arms for their generosity over the past few years.
The Saltwood Run has been held for many years on Boxing
Day. Large numbers of runners turn out
to run off some of the Christmas dinner.
North Kent MNDA have been a recipient of funds from the run
for many years. We have received a
cheque for £2,500.00 from funds raised at the 2018 run.
Thanks to Ross Sansom and the team organising the Saltwood
Run and to all the runners who efforts over many years have raised substantial
funds to support people living with MND in East Kent.
Many thanks also to the Members of Rotary Club of The
Channel for their continuing support over many years. We received a cheque for £250 for the run in
Huge thanks to everyone involved in the Fun Run: The Runners, Ross Sansom and his team, Rotary Club of The Channel and everyone who donated. People living with MND in East Kent and MNDA East Kent are very grateful for your continuing support.
On Tuesday 2nd April, Katy Styles and the We Care
Campaign team arrived at Westminster to collect the UK Parliament’s Digital
Campaigner of the Year.
2019 marks the second year
of the Your UK Parliament awards. The winning entries were chosen by the
Speaker of the House of Commons, and a judging panel of MPs, Peers and
independent judges. All of the winners attended an awards ceremony hosted by
the Speaker in the Houses of Parliament.
The Rt. Hon John Bercow,
Speaker of the House of Commons, said:
“There is nothing more
inspiring than hearing how these winners used so many innovative ways to get
people more involved and connected with UK Parliament. This year’s awards have
shone a light on this amazing work – and will hopefully encourage others to
join the campaign.”
We Care Campaign is an ongoing campaign to get a better deal
for the UK’s 7 million unpaid carers. It is led by carers, for carers. Carers
are a hard to reach group as they often feel too tired, too isolated and
disempowered to take part in campaigning.
Care undertook 3 digital activities. Katy ran an e-petition calling on
government to publish a Carers’ Strategy. The petition obtained 2,124
signatures. We Care also encouraged unpaid carers to take part in a twitter
#AsktheMinister question session to the Minister for Social Care, Caroline
Dinenage. We then used our own @WeAreCarers account to host Barbara Keeley, the
Shadow Minister, enabling carers to ask more than one politician the same
questions during Carers Week. We Care organised a Valuing Carers digital event
where decision makers, carers and the cared for posted messages of support for
unpaid carers during Carers Rights Day.
Care Campaign’s activities made a massive difference and impact on our target
audience of unpaid carers who took part in our campaign actions. Individual
carers took part in digital actions which helped organise a real grassroots
campaign. We Care worked hard to utilise every contact made, by replying to
every single contact individually. An unpaid carer speaking of one of our
digital takeovers said, “Normally we get a bit of cake and bunting for Carers
Rights Day. This is so much more than that. It’s not been done before.” We
equally made an impact on individual decision makers, within parliament and
beyond and have built a strong network, enabling us to reach more carers in
Katy Styles who led the campaign said,
“We Care want to thank you so much for a special day
in Parliament. Engaging with Parliament at this time in a positive way has
never been so important and we have loved playing a small part in this.”
East Kent MNDA Group help their annual Spring Lunch on
Saturday 27th April at the Yarrow Hotel, Broadstairs.
There were 36 diners and we all enjoyed a well prepared and
presented 3 course meal by the staff of the Yarrow Hotel. The food was excellent and heartily enjoyed
by everyone present.
We had the honour of having Richard Coleman, the Chairman of
our Board of Trustees as our guest.
Richard gave a short speech about the history of the association and
where it is going in the future, which was very well received.
Richard made presentation to Katy Styles and Clive Hudson
for service to the association.
We had been donated a 4 Ball Golf Prize for Goodwood and we
duly auctioned this. Pat McCabe won the
bidding with a donation of £100.00.
Adrian Powell made an impassioned plea for diners to either
join our walk to D’Feet MND on May 18th or get their friends to do
so. See www.mnda-eastkent.org.uk/walk19
We ended with a raffle, which is always fun. It is a joy to watch the anticipation of our young diners. Thanks to all our members who contributed prizes.
Thanks to everyone for coming and special thanks to the
staff and management of the Yarrow Hotel, who made us feel very welcome.
Below is a short animation film showing why it is important to persuade the government to scrap the six month time limit for people with MND and other terminal illnesses before they can access benefits.
Ten people die every day while waiting for a decision on their benefit claim.
The ‘Scrap 6 Months’ animation films are inspired by real stories and facts. The characters, however, are fictitious and do not depict real people either living or dead.
The local association held its regular support meeting on Saturday 9th February at Thanington Neighbourhood Resource Centre Canterbury.
The meeting was well attended by those living with MND, their carers, association volunteers and friends.
We learnt about the role of Association Visitors, how they can support people with MND and their carers/families.
We also learnt about the role of a trustee of the national MND association. How it was important to support research via funding and to constantly highlight to MPs and the wider media the difficulties and frustration that people with MND have in accessing benefits.
Clive, the local association chairmen gave an update on monies recently raised. He also spoke about how the local association spent its funds.
One of the issues discussed was how to access priority services with the major utility companies, such as being able to have an emergency electrical supply during power cuts so that ventilators will still work.
A variety of homemade cakes were enjoyed by those present.