This campaign spearheaded by Charlie Fletcher, who is living with MND, who talks about why having a voice is important to her.
Please visit http://www.mndassociation.org/get-involved/campaigning-influencing/general-election-campaign-2015 to see a film of Charlie talking of why having a voice is important to her.
You can also email your prospective parliamentary candidates from this page.? Please do help, the more people sending emails, the more chances of our voice being heard.
Charlie is being supported by a band of Champions, 2 of whom Mark and Katy Styles are from our group in East Kent.
Follow the links from Mark & Katy above for their Champions Messages.
The full list of Champions and their messages?is available here ?http://www.mndassociation.org/get-involved/campaigning-influencing/general-election-campaign-2015/champions
LAST month we launched our General Election campaign, Don’t let me die without a voice, to ensure that people living with MND get the communication support they need.
Over 1,000 people have already taken action. This is fantastic! Thank you to everyone who has joined the campaign.
But we still need your help
There’s still time to submit evidence to the All-Party Parliamentary Group (APPG) on MND’s inquiry into communication support for people with MND.
The Group will publish a report from the inquiry in early 2015. This is great opportunity for anyone who has experience of accessing communication support to share their story.
The APPG wants to hear from people with MND, carers, former carers, family
members and professionals about their experiences of accessing communication support.
An online survey is open to help people share their experiences and takes 5-10 minutes to complete. Please help us promote this survey and encourage people to submit their stories. You can visit http://www.mndassociation.org/appginquiry to take the survey online and download paper copies.
Contact the campaigns team at campaigns@mndassociation .org if you need support.
Please add your voice.
Alongside all our amazing volunteers who are supporting our General Election campaign, we are delighted to be joined by a special group of people who have been personally affected by MND to champion the campaign.
Standing behind Charlie Fletcher, who is the face of our campaign, our campaign champions are helping to make our message loud and clear: Don’t let people with MND die without a voice. You can read more about our campaign champions at http://www.mndassociation.org/voice
What else can you do?
If you haven’t already done so, please spare two minutes to take action by emailing your local candidates standing in the General Election, and ask them to commit to meeting the communication challenges faced by people living with MND. Please visit http://www.mndassociation.org/voice to join the campaign.
Order new campaign materials Manifesto summary- a new easy-to-read summary of our manifesto highlighting our key policy areas and campaign asks is available. This could really help you engage your local candidates with the campaign.
MND Charter postcard for candidates
Give a postcard to your local candidates and urge them to sign our MND Charter as a signal of their commitment to work with us if they’re elected in the next Parliament. Keep a few by your front door for when they come knocking next year!