My name is Madeleine Moon, I am an MP and Chair of the All-Party Parliamentary Group (APPG) on MND*. I lost my husband to a form of MND, so I know first-hand the impact the disease has on the individual and their families.

MND can have a significant financial impact on families and access to benefits is therefore really important. ?However, we know that some people with MND find it hard to access these benefits.

The APPG on MND has therefore launched an inquiry?into access to?Personal Independence Payment (PIP), a disability benefit for people aged under 65. ?We want to gather evidence of the experiences of people with MND so that we can help improve the system.

Please spread the word about the survey ? the more people with MND who share their experiences, the more likely we are to improve access for people with MND and their families.

Thank you very much.

Madeleine Moon MP

Chair of the APPG on MND

*The APPG on MND is a cross-party group of MPs and Peers with an interest in MND. The MND Association provides the secretariat to the Group.

PS If you would like a paper copy of the survey please contact Tina Downs on tina.downs@mndassociation.org.