Mark Styles has been appointed to The Rare Disease Advisory Group (RDAG). Mark sent the following note.

I attended my first meeting of the Rare Disease Advisory Group (RDAG) in my capacity as a Patient and Public Voice representative. ?We discussed a broad range of issues relating to the commissioning of highly specialised medical services in England, Scotland, Northern Ireland and Wales, and particularly the establishment of European Reference Networks to link up centres of medical excellence for rare diseases across Europe.

For further details please follow this link https://www.england.nhs.uk/commissioning/rdag/