Joseph (Joe) Taylor a scaffolder from Deal, was enjoying
some drinks with friends in The Farrier, Deal.
Joe Taylor
His friends tried to get him to shave his head and jovially
offered to pay him to do so.
Joe decided to go ahead and have his hair shaved off, but insisted
it was done for charity.
The charity Joe chose was the Motor Neurone Disease
Association in memory of his Grandmother who died from Motor Neurone Disease.
Joe’s head was shaved at the end of May, donations were made
by Friends, Family, Customers of The Farrier and colleagues at All Access
Scaffolding in Margate.
The total raised was £300 and this was presented to Clive
Hudson, Chairman of the East Kent Branch of MNDA. The money will be used to support people
living with MND in East Kent.
MNDA East Kent would like to thank Joe, his family and
friends, customers at the Farrier and colleagues at All Access Scaffolding for
their generosity.
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The third Coastal walk to D’Feet MND took place on Saturday
May 18th. There were three walk
options.
A long walk (approx. 24 miles) Whitstable to
Broadstairs.
A medium length walk (approx. 13 miles) Minnis
Bay to Broadstairs.
A short walk (approx. 6 miles) Margate to
Broadstairs.
Walkers at the Margate Start Point
Some 60 walkers walked on the day. The weather was fair and the walk most
enjoyable. The walkers from Whitstable
started at 7.30 am, those from Minnis Bay at 11.30 and the final group from Margate
at 1.30pm
All walkers finished at the Wrotham Arms, Ramsgate Road,
Broadstairs, between 2 and 4.30pm. Medallions were presented to all walkers who
completed their walk.
The Finish Line
Adrian Powell made a brief speech of thanks to all walkers,
the organisers and of course our sponsors.
Refreshments were provided by the Wrotham Arms and excellent
they were, thanks to Jackie and her team at the Wrotham Arms. Soothing drinks were also enjoyed from the
bar.
As of June 12th, the Walk has raised £6,500 including gift aid. A fantastic result which means over 3 years we have raised over £25,000 to support people living with MND in East Kent and contribute towards research for a cure for this devastating disease.
As a direct result of our walk in 2018, MNDA East Kent have been able to fund the purchasing of a piece of equipment to allow the respiratory nurse to be mobile in the MND clinic at William Harvey Hospital in Ashford. This will make life much easier for patients with MND visiting the clinic.
We will be announcing details of installation on our web site, when the equipment is installed.
Huge thanks to our sponsors Greenwich Kitchens and Premier Signs
and Graphics; to The Wrotham Arms; to all walkers; to everyone who collected
sponsorship, and everyone who gave generously.
The Wrotham Arms in Broadstairs has been a fantastic
supporter of MNDA East Kent for several years.
The Wired New Year’s Day Jam, which featured many local musicians, and prizes donated by various people, with a special mention to Hornby for their generous donation, raised the fabulous sum of £960.30. The main contributor being the raffle, but also sales of the Fairholt album and some £70 from the collection box.
Raffle Prizes
More recently on 14th April Lodestone, Flame
Pilots and Spyplane played in the afternoon.
Ben Mills and Robert Jarvis performed in the evening, great fun was had,
and a raffle raised some £310.00.
Flame Pilots
The Wrotham arms has now raised over £6,000.00 for MNDA East Kent, since the 1st Jan 2016. Thanks to Jackie and her staff at the Wrotham Arms, thanks to all the musicians who have played at various functions, thank to all organisers and finally thanks to all the customers at the Wrotham Arms for their generosity over the past few years.
The Saltwood Run has been held for many years on Boxing
Day. Large numbers of runners turn out
to run off some of the Christmas dinner.
North Kent MNDA have been a recipient of funds from the run
for many years. We have received a
cheque for £2,500.00 from funds raised at the 2018 run.
Thanks to Ross Sansom and the team organising the Saltwood
Run and to all the runners who efforts over many years have raised substantial
funds to support people living with MND in East Kent.
Many thanks also to the Members of Rotary Club of The
Channel for their continuing support over many years. We received a cheque for £250 for the run in
2018.
Huge thanks to everyone involved in the Fun Run: The Runners, Ross Sansom and his team, Rotary Club of The Channel and everyone who donated. People living with MND in East Kent and MNDA East Kent are very grateful for your continuing support.
On Tuesday 2nd April, Katy Styles and the We Care
Campaign team arrived at Westminster to collect the UK Parliament’s Digital
Campaigner of the Year.
2019 marks the second year
of the Your UK Parliament awards. The winning entries were chosen by the
Speaker of the House of Commons, and a judging panel of MPs, Peers and
independent judges. All of the winners attended an awards ceremony hosted by
the Speaker in the Houses of Parliament.
The Rt. Hon John Bercow,
Speaker of the House of Commons, said:
“There is nothing more
inspiring than hearing how these winners used so many innovative ways to get
people more involved and connected with UK Parliament. This year’s awards have
shone a light on this amazing work – and will hopefully encourage others to
join the campaign.”
We Care Campaign is an ongoing campaign to get a better deal
for the UK’s 7 million unpaid carers. It is led by carers, for carers. Carers
are a hard to reach group as they often feel too tired, too isolated and
disempowered to take part in campaigning.
We
Care undertook 3 digital activities. Katy ran an e-petition calling on
government to publish a Carers’ Strategy. The petition obtained 2,124
signatures. We Care also encouraged unpaid carers to take part in a twitter
#AsktheMinister question session to the Minister for Social Care, Caroline
Dinenage. We then used our own @WeAreCarers account to host Barbara Keeley, the
Shadow Minister, enabling carers to ask more than one politician the same
questions during Carers Week. We Care organised a Valuing Carers digital event
where decision makers, carers and the cared for posted messages of support for
unpaid carers during Carers Rights Day.
We
Care Campaign’s activities made a massive difference and impact on our target
audience of unpaid carers who took part in our campaign actions. Individual
carers took part in digital actions which helped organise a real grassroots
campaign. We Care worked hard to utilise every contact made, by replying to
every single contact individually. An unpaid carer speaking of one of our
digital takeovers said, “Normally we get a bit of cake and bunting for Carers
Rights Day. This is so much more than that. It’s not been done before.” We
equally made an impact on individual decision makers, within parliament and
beyond and have built a strong network, enabling us to reach more carers in
2019.
Katy Styles who led the campaign said,
“We Care want to thank you so much for a special day
in Parliament. Engaging with Parliament at this time in a positive way has
never been so important and we have loved playing a small part in this.”
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Beyond the Valley Travel is a not for profit organiser of
travel for members in the Elham Valley.
Jenny Barling who sadly died of MND in late 2017 organised
the travel events for many years and was a very popular figure.
Upon her death David and Surian Tamsitt took over,
continuing Jenny’s excellent work in previous years.
During the period since Jenny died the group have held many
events and at these event raffles were held in memory of Jenny.
Surian Tamsitt presenting cheque to Clive Hudson, Chair MNDA East Kent
This culminated in Mid-April with the presentation of a
cheque for £1,100.00 to MNDA East Kent to be used for the support of people
living with MND in East Kent.
Members of Beyond the Valley Travel at the cheque presentation.
MNDA East Kent would like to thank David, Surian and all the
members of Beyond the Valley Travel for their generosity. Huge thanks to you all.
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East Kent MNDA Group help their annual Spring Lunch on
Saturday 27th April at the Yarrow Hotel, Broadstairs.
There were 36 diners and we all enjoyed a well prepared and
presented 3 course meal by the staff of the Yarrow Hotel. The food was excellent and heartily enjoyed
by everyone present.
Diners at the Spring Lunch 2019
We had the honour of having Richard Coleman, the Chairman of
our Board of Trustees as our guest.
Richard gave a short speech about the history of the association and
where it is going in the future, which was very well received.
Richard made presentation to Katy Styles and Clive Hudson
for service to the association.
We had been donated a 4 Ball Golf Prize for Goodwood and we
duly auctioned this. Pat McCabe won the
bidding with a donation of £100.00.
Adrian Powell made an impassioned plea for diners to either
join our walk to D’Feet MND on May 18th or get their friends to do
so. See www.mnda-eastkent.org.uk/walk19
We ended with a raffle, which is always fun. It is a joy to watch the anticipation of our young diners. Thanks to all our members who contributed prizes.
Our amazing raffle
Thanks to everyone for coming and special thanks to the
staff and management of the Yarrow Hotel, who made us feel very welcome.
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We had 53 diners at our annual Christmas Lunch at the Yarrow Hotel, Broadstairs on Saturday 8th December.
Diners waiting for the first course to be served
We had an excellent meal, beautifully served by the staff of the hotel, who as ever were excellent.
During the course of the lunch Katy Styles MNDA Trustee awarded a 25 year award to Hazel Izzard (Watts) for her service to MNDA in East Kent over the past quarter century. Hazel has retired from our group and we gave her a beautiful bouquet in recognition of the incredible work she has done to support people living with MND in East Kent.
Hazel and Katy with Certificate Hazel with bouquet of flowers
As in previous years we had a superb raffle, with prizes being bought along by many diners and we had lots of fun drawing the raffle and the children present certainly had fun collecting various prizes.
Raffle prizes
We would like to thank the Yarrow Hotel and their wonderful staff, all raffle donors and everyone who attended for making it such a splendid lunch.
We wish everyone a wonderful Christmas and a good 2019.
We will be holding our third Coastal Walk to D’Feet MND on Saturday May 18th 2019.There will be three walks, the first from Whitstable to Broadstairs , the second from Birchington Minnis Bay to Broadstairs and the third from Margate to Broadstairs. All will end with refreshments at The Wrotham Arms, Ramsgate Road, Broadstairs.There is an entrance fee of £10 which includes a tee shirt (collected on the day), training program, detailed plan of walk, and full insurance. Only registered walkers can walk and they must wear the tee shirt for insurance purposes.Each walker is requested to find sponsorship to support people living with MND in East Kent. There is no obligation to raise sponsorship but all support is greatly appreciated.To register for the walk, please visit www.mnda-eastkent.org.uk/walk2019 , complete the form, then follow the link to Just Giving to pay your entry fee of £10. If you intend to set up your own JustGiving page, we are happy for you to do so. Please select MNDA as your charity and then please mention MNDA East Kent in your story to ensure that funds you raise are used for people living with MND in East Kent. Once you have set up your JustGiving Page, please link it to our team at www.justgiving.com/teams/coastalwalk2019/join so we can keep track of the total funds we raise.If you want to make a donation in support but not register please visit our Donations PageShould you experience any difficulties please email webmaster@mnda-eastkent.org.uk
The route is shown on the map above. Training programs for the walks, the Walk Plan, sponsorship forms, posters and flyers can be downloaded below:
