Information

Our Vision
A world free from MND.
Our Mission
We improve care and support for people with MND, their families and carers.
We fund and promote research that leads to new understanding and treatments, and brings us closer to a cure for MND.
We campaign and raise awareness so the needs of people with MND and everyone who cares for them are recognised and addressed by wider society.
Our Values
??People with MND, their families and carers are at the heart of everything we do.
??We collaborate, and value everyone?s contribution.
??We achieve excellence through personal commitment and ongoing improvement.
??We respect and respond to people?s diverse needs, backgrounds and views.
??We achieve our aims through building open and transparent relationships.
About Us
The MND Association was founded in 1979 by a group of volunteers with experience of living with or caring for someone with MND. Since then, we have grown significantly, with an ever-increasing community of volunteers, supporters and staff, all sharing the same goal ? to support people with MND and everyone who cares for them, both now and in the future. We are the only national charity in England, Wales and Northern Ireland focused on MND care, research and campaigning.
About MND – Key Facts
If you require more information on the statistics below, please contact the MND Association?s communications team: communications@mndassociation.org
??MND is a fatal, rapidly progressing disease that affects the brain and spinal cord.
??It attacks the nerves that control movement so muscles no longer work. MND does not usually affect the senses such as sight, sound, feeling etc.
??It can leave people locked in a failing body, unable to move, talk and eventually breathe.
??It affects people from all communities.
??Some people may experience changes in thinking and behaviour, with a proportion experiencing a rare form of dementia.
??It kills a third of people within a year and? more than half within two years of diagnosis.
??A person?s lifetime risk of developing MND is up to 1 in 300.
??Six people per day are diagnosed with MND in the UK.
??It affects up to 5,000 adults in the UK at any one time.
??It kills six people per day in the UK, this is just under 2,200 per year
??It has no cure.
Our Reach
We are the only national charity in England, Wales and Northern Ireland focused on MND care, research and campaigning.
Around 3,500 people with MND use an Association funded care centre, this is approximately 70% of those with the disease.
Over 7,000 people give their time to volunteer and fundraise on our behalf. This includes our 297 (as at November 2015) Association Visitors who provide information and one to one support to people with MND.
We have over 9,000 members helping to strengthen our voice to ensure everyone with MND has access to the best possible care.

Our 89 (as at November 2015) volunteer-led branches and groups provide local support to people with MND, their families and carers. A growing number also hold separate support meetings for carers.

We employ around 170 staff, whose specialist skills and knowledge are dedicated to improving the lives of people affected by MND.

We support hundreds of health and social care professionals who provide and manage services for people with MND.
We work with and support scientific and clinical research communities in the UK and worldwide.
Almost a thousand delegates attend our annual research conference ? the International Symposium on ALS/MND.
We lobby the Government in London, the Welsh Government and the Northern Ireland Executive to ensure national policy reflects the needs of people affected by MND. We also campaign in coalition with other charities, through the Care and Support Alliance, the Association of Medical Research Charities, MND Scotland and others.
We are an active member of the International Alliance of MND/ALS Associations.
We have around 26,000 ?likes? on Facebook and over 20,000 Twitter followers (Nov 2015).
Making A Difference
We will do all that we can to enable everybody living with MND to receive the best care, achieve the highest possible quality of life and to die with dignity.
Further information
For further information on the work of the MND Association:
Telephone: 01604250505Fax: 01604 624726/638289Email: enquiries@mndassociation.org
To request printed copies of our latest reports please email communications@mndassociation.org
If you would like to make a complaint, please refer to our Complaints Policy

Registered Charity No. 294354Registered Office: David Niven House, 10-15 Notre Dame Mews, Northampton. NN1 2BG.
Company Limited by Guarantee No 200702. ?Registered in England.

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