Monthly Archives: August 2017

In Memory of David Alan Ironmonger

David Alan Ironmonger

 

RIP David Alan Ironmonger born 19th September 1944, sadly died on 16th July 2017.

David’s family and friends donated £600 to Motor Neurone Disease Association in East Kent in memory of David.

The East Kent Group wish to thank everyone who donated.  The money will be used to support people living with MND, their carers and families in East Kent.

Support Meeting Tea at Strode Park Foundation

We were invited on Sunday August 6th to visit Strode Park Foundation for tea and a walk around parts of the house and the grounds.

There were 12 of us attending and we enjoyed a fabulous tea of sandwiches, scones with jam and clotted cream and a selection of cakes.

John Cotterill addressing our group.

The sandwiches, scones and cakes were prepared at Strode Park by ??, all were beautifully fresh and delicious.  The tea was served by Anthony who thoroughly spoiled us.

We were shown around the grounds, Daren found a lake with a no fishing sign, which indicated to him there would be something worth catching.

The open air auditorium is a fantastic facility with every part accessible by wheelchair, we were invited to look at the website Strodeparkfoundation.co.uk to find out about concerts and booking them if we wished.

We were shown around non residential parts of the house, including the gymnasium and the hydro therapy pool, which is available to people living with disabilities including MND.

Daren looked up to catch this image of our group – most of us missed it!!

Huge thanks to John Cotterill who showed us around and to ?? and Anthony for making the tea so special.

We have been invited to have tea at Strode Park at some future date and we are welcome to attend any public events held at the Foundation.

 

 

Coastal Walk To D’Feet MND raises over £9000.

A coastal walk was held on 20th May to raise funds for MNDA in East Kent.

The walk started in Whitstable at 07.00 with 21 walkers turning up to register for the 25 mile walk.  These walkers walked some 12miles along the beautiful East Kent coast in glorious sunshine until they reached Minnis Bay, Birchington.

Starters from Whitstable

The walkers were joined at Minnis Bay by another 46 walkers registered to walk 13 miles, all 67 walkers then set out to walk to Ramsgate, along the Kent Coast, through Westgate and Margate to The Botany Bay Hotel.

Some starters from Minnis Bay

At The Botany Bay Hotel the walkers were joined by the final group of 16 walkers registered to walk 5 miles to Ramsgate.  All 83 walkers now walked though Broadstairs and on into Ramsgate, where the walk ended at the Churchill Tavern, who laid on light refreshments  for walkers and supporters.

All walkers who finished were given a medallion for completing the inaugural Coastal Walk To D’Feet MND.  Adrian Powell Made a short speech  to the walkers thanking them for making the day very enjoyable and for raising funds for MNDA in East Kent.

We did it!!

The walk was conceived by Cath Miller, who formed a committee of Steve Miller, Adrian Powell, Lynne Paine, Dawn Smith, Ayesha Powell and Clive Hudson.  The committee planned the whole event and executed the walk with the help of several volunteers who manned registration, acted as marshals, collected cash and put up signage.

Huge thanks to all the walkers and their sponsors, who enable us to raise £9,064.88 including gift aid.

Special thanks to

  • Dawn Smith for sponsoring the medals.
  • Ian Pettman – Premier Signs for sponsoring the signage.

Diary Date for 2018 – the Coastal Walk to D’Feet MND will take place on Sunday May 20th.

 

AGM July 8th 2017

On Friday evening when we arrived at the hotel,  we had the opportunity to meet with some trustees and members of other groups, which was helpful in identifying some new ideas to work towards improving our activities in East Kent.

Saturday started with a short welcome speech by Alun Owen Chair of the Trustees of the Association.

Sally light then spoke of what we had achieved in 2016 and how we can help.  She used 2 excellent graphics for this and these are reproduced below.  These present the gist of her speech much better than any words.

Chris James spoke about the Association’s in complementing statuary services, collaborative working and the MND Costs Campaign.

Steve Bell spoke about the “What You Should Expect” an excellent small booklet giving brief details of what a pwMND should expect from the NICE Guidelines on MND and the Audit Tool to help assess how various bodies are doing in compliance with the guidalines.

We broke into groups which covered subjects like money for nothing fund raising, care update, the journey from awareness to action and local and regional finance.

We broke for lunch and the opportunity to look around the various stalls, we were particularly impressed by REMAP, a charity which makes custom made equipment to help disabled people live more independent lives.  Please visit www.remap.org.uk

The AGM followed, during which our own Katy Styles was elected as a Trustee and Richard Coleman was elected as Chair of the Trustees.

The keynote speech was  delivered by Professor Ammar Al-Chalabi.  This speech was one of the most impressive I have ever been present at and I recommend everyone to look at it here https://www.facebook.com/pg/mndassociation/videos/?ref=page_internal click the link to MNDA Research under All Videos.

Dragon Boat Race – Maidstone

East Kent MNDA Group entered the KM Charity Group Dragon Boat Race for the first time on July 2nd this year.

Our team was made up entirely from one family who had been affected by MND, supported by members of another family affected by MND.

Our Dragon Boat Crew

The racing took place in Mote Park Maidstone and we arrived for our first race, registered only to find we had missed the cut off time, so rather than 3 races. we only raced twice.

They are off!!!

Though none of our team had ever rowed a dragon boat, we managed to win both our races, however we were not fast enough to be in the final 6 teams, for the race off to be winner of the day.

First to the post

We thoroughly enjoyed the day and the team is determined to race in 2018 and make a serious attempt to win.  Huge thanks to our rowers and everyone who turned up to support.  Thanks to KM Charity Group for organising this fabulous event.

Murder Mystery at Tenterden raises over £3000

On June 30th Wealden Business Group hosted a Murder Mystery Evening at Little Silver Country Hotel in Tenterden.  The case was The Curse of the Willoughby Diamond.

The evening started with champagne as we were shown to our tables, we were hosted on a table by local members who were excellent company.

We enjoyed an excellent 3 course meal to die for!!   During the meal the actors presenting the murder mystery developed the plot of the murder and murder was indeed committed.

Peta Ashby centre with winners Gary and Clair Bodie

We were then invited to use our sleuthing skills to question the cast to see if we could identify the guilty party.  Our table asked some interesting questions, however we did not fine the killer.

The murderer was eventually declared and everyone in the room was a bit surprised but less so after being given the details of the crime.

There were several very good 1920 costumes, the winners Gary and Clair Bodie were chosen by a panel who were judging for the best couple, which was unfortunate for one girl on our table who was dazzling in a 20’s outfit, however her partner was not in period dress, so could not win.

The evening ended with an announcement that Murder Mystery had raised over £3000 for the Moor Neurone Disease Association in East Kent.