Category Archives: Fund Raising

MNDA Million Metres

For some time now I have been staggered at the amount of time people living with MND need to travel for various services.

This came to head for me, when I heard a member recount how he has had a round trip of 7 hours plus some 2 hours waiting times. This struck a bell with me, as I often complain about how far we need to travel from East Kent to attend MNDA meetings.

I believe no person living with MND should travel more than 1 hour from their home for any services.

MNDA Million Metres was born, I have committed to cycle one million metres during my 75th year to raise funds for MNDA in East Kent. I hope to raise 1 penny for each metre ridden. These funds to be used exclusively to campaign for and achieve travelling of less than one hour. Where is necessary it exceeds one hour, the journey is made as comfortable as possible.

Since this project involves raising awareness and campaigning as well as fund raising, I expect it to take more than a single year to achieve. The concept of MNDA Million Metres will be used until the objective is achieved. In the unlikely event that we raise more funds than necessary for the project then any surplus will be used for research into a cure for MND.

Please support this project either by donating funds via JustGiving at https://www.justgiving.com/fundraising/mndamillionmetres you can also see the latest updates here.

You can also join our team and raise more funds at https://www.justgiving.com/team/MNDAMillionMetres

Thank you for visiting this page, updates will be added to the JustGiving page usually each week.

Quiz – Wrotham Arms

A quiz will be held on Thursday November 21st at The Wrotham Arms, Ramsgate Road, Broadstairs, to raise funds for MNDA East Kent. The Quiz will start at 7.30 prompt

MNDA East Kent is looking to enter 2 tables of 6 for the quiz, please email chair@mnda-eastkent.org.uk to book a place.

Entry is £5 per head, nibbles will be provided and teams may bring any extra food they wish.

There will be two games, winners of which will receive a prize. There will also be a raffle.

We look forward to seeing as many supporters turning out to support the Wrotham Arms who have been a fantastic supporter of MNDA East Kent for many years.

Ruby Walk to D’Feet MND

The Ruby Walk to D’Feet MND took place in Canterbury on Sunday 6th October.

Under lowering skies, we hoped for a period without rain and our prayers were answered and our walk went ahead without a single drop of rain.

Brian and Hilary

This year is the 40th anniversary of the Motor Neurone Disease Association. To mark this event Brian Sackett and his sister Hilary Smith organised the Ruby Walk to D’Feet MND.  Both Brian and Hilary lost partners to MND, so it is a subject very close to their hearts.

Brian and Hilary hoped that 40 walkers would walk for 40 minutes and raise £40 in sponsorship, a target of £1600.

54 Walkers turned out on the day, walking for 40 minutes around the athletics track at Lifestyle Fitness in Canterbury, raising the astonishing sum of £3,113 in sponsorship.

The event started with a group photograph of all the Walkers by the Kentish Gazette, which we hope will be published in their next edition.

Walkers ready to start

Walkers came from all parts of East Kent and some walkers travelled from as far as the Isle of Sheppey.

Huge thanks to Brian and Hilary for organising this excellent event,  especially thanks to all 54 walkers who jointly raised £3,113 in sponsorship to date, a fabulous amount which will be used to support people living with MND in East Kent and to contribute towards researching a cure for this devastating disease. 

We would also like to thank Lifestyle Fitness for allowing us to use their track and to Kentish Gazette and the KM Group for their support and especially to everyone who contributed monies towards this great fund-raising event

If anyone has any sponsorship remaining to be paid, please send your cheque made out to MNDA East Kent to 171 Percy Avenue, Broadstairs, Kent, CT10 3LE or alternately to Just Giving at https://www.justgiving.com/fundraising/rubywalk2019  If you use the Just Giving Link please indicate this is sponsor monies for the Ruby Walk.

Anyone wishing to donate can also use the Just Giving link above.

You can see Brian and Hilary give an interview to Kent Online.  It is very moving and worth a read:  https://www.kentonline.co.uk/canterbury/news/i-thought-it-can-t-strike-our-family-again-how-wrong-was-i-210322/  this link also takes you to the KMTV interview.

National Citizenship Service Group fund raising in Thanet.

A group of young people doing their National Citizenship service selected MNDA East Kent as their charity for a series of events which took place in Thanet from Tuesday 13th until Friday 16th August.

The reason for selection of MNDA was the death of a family member, you can see the video the group made about this here https://t.co/QYjklKXEEt?amp=1

Another member of the group also had been affected by MND, you can see the video the group made about this here

NCS Thanet Group 3 Aidan Holdford, Theo Trigwell, Jonathan Stewart-Reed, Mia Hughes, Sade Allison, Imogen Kyte, George Cox, Henry Carter Edwards, Ffion Cousins, Eve Blythe-Adam, Morgan Carey, Chardonnay Tamara, Chloe Marker and Toby Saunders

You can donate to the group on Just Giving by visiting https://t.co/ccILEJNMM4?amp=1 This group of young people hoped to raise in excess of £500, they actually achieved the astonishing sum of £1337.00. Huge thanks to every donor.

The events planned were:

Tuesday 13th August Walking Football with a cake sale at Margate Football Club, Hartsdown Road, Margate. 13.00 – 16.00. Admission was free. To play football, the donation was £1 and for 3 penalties the donation was £2. Full details can be found by visiting here https://www.instagram.com/p/B08-OltlmEh/?igshid=1dvkortoex0xq

Tuesday 13th August at 16.35 members of the NCS Group visited 107.8 Academy FM to be interviewed. Details here https://www.instagram.com/p/B053laKFlAg/?igshid=1rl585ob4lbos

Wednesday 14th August there was a live stream on Twitter, Instagram and You Tube.

Friday 16th August the group held a NEON PARTY at Newington Green Community Centre,
Marie Thomas, Princess Margaret Avenue, Ramsgate, CT12 6HX, from 16.00 – 20.00. Entry was £3.00. There was music and refreshments.

Neon Party in full swing

Huge thanks to this wonderful group of young people, who raised £1337.00 in a very short period of time. Thanks to you all and thanks to everyone who supported your efforts and to everyone who donated.

Ruby Walk to D’Feet MND

Can you WALK for 40 minutes and can you raise £40 sponsorship?

If the answer is yes to both please join us in Canterbury on Sunday 6th October. The venue is Lifestyle Fitness, Canterbury Campus, Knight Avenue, Canterbury, CT2 QA and the time is 2pm.

This year is the 40th anniversary of the Motor Neurone Disease Association. To mark this event Brian Sackett and his sister Hilary Smith are organising a Ruby Walk to D’Feet. Both Brian and Hilary lost partners to MND, so it is a subject very close to their hearts.

Hilary Smith and Brian Sackett

Registration details are shown below, if you register on the web site, you will be sent an electronic sponsorship form which you can print, if you chose to register with Brian Sackett he will send you a sponsorship form.

Every sponsored walker will receive an MNDA tee shirt and upon completing the 40 minutes, you will receive a souvenir medallion of the day.

You can register for our walk at http://mnda-eastkent.org.uk/rubywalk

You may donate to the Ruby Walk to D’Feet MND at https://www.justgiving.com/fundraising/rubywalk2019 all monies donated will be used to support people living with MND in East Kent or to contribute towards research for a cure.

Brian and Hilary gave an interview to Kent On Line. It is very moving and worth a read. https://www.kentonline.co.uk/canterbury/news/i-thought-it-can-t-strike-our-family-again-how-wrong-was-i-210322/ this link also takes you to the KMTV interview.

Joe Shaves Head For MNDA

Joseph (Joe) Taylor a scaffolder from Deal, was enjoying some drinks with friends in The Farrier, Deal.

Joe Taylor

His friends tried to get him to shave his head and jovially offered to pay him to do so.

Joe decided to go ahead and have his hair shaved off, but insisted it was done for charity.

The charity Joe chose was the Motor Neurone Disease Association in memory of his Grandmother who died from Motor Neurone Disease.

Joe’s head was shaved at the end of May, donations were made by Friends, Family, Customers of The Farrier and colleagues at All Access Scaffolding in Margate.

The total raised was £300 and this was presented to Clive Hudson, Chairman of the East Kent Branch of MNDA.  The money will be used to support people living with MND in East Kent.

MNDA East Kent would like to thank Joe, his family and friends, customers at the Farrier and colleagues at All Access Scaffolding for their generosity. ff

Thank you, Wrotham Arms.

The Wrotham Arms in Broadstairs has been a fantastic supporter of MNDA East Kent for several years.

The Wired New Year’s Day Jam, which featured many local musicians, and prizes donated by various people, with a special mention to Hornby for their generous donation, raised the fabulous sum of £960.30.  The main contributor being the raffle, but also sales of the Fairholt album and some £70 from the collection box.

Raffle Prizes

More recently on 14th April Lodestone, Flame Pilots and Spyplane played in the afternoon.  Ben Mills and Robert Jarvis performed in the evening, great fun was had, and a raffle raised some £310.00.

Flame Pilots

The Wrotham arms has now raised over £6,000.00 for MNDA East Kent, since the 1st Jan 2016. Thanks to Jackie and her staff at the Wrotham Arms, thanks to all the musicians who have played at various functions, thank to all organisers and finally thanks to all the customers at the Wrotham Arms for their generosity over the past few years.

Saltwood Boxing Day Fun Run 2018

The Saltwood Run has been held for many years on Boxing Day.  Large numbers of runners turn out to run off some of the Christmas dinner.

North Kent MNDA have been a recipient of funds from the run for many years.  We have received a cheque for £2,500.00 from funds raised at the 2018 run.

Thanks to Ross Sansom and the team organising the Saltwood Run and to all the runners who efforts over many years have raised substantial funds to support people living with MND in East Kent.

Many thanks also to the Members of Rotary Club of The Channel for their continuing support over many years.  We received a cheque for £250 for the run in 2018.

Huge thanks to everyone involved in the Fun Run:  The Runners, Ross Sansom and his team, Rotary Club of The Channel and everyone who donated. People living with MND in East Kent and MNDA East Kent are very grateful for your continuing support.

Thanks, Beyond the Valley Travel

Beyond the Valley Travel is a not for profit organiser of travel for members in the Elham Valley.

Jenny Barling who sadly died of MND in late 2017 organised the travel events for many years and was a very popular figure.

Upon her death David and Surian Tamsitt took over, continuing Jenny’s excellent work in previous years.

During the period since Jenny died the group have held many events and at these event raffles were held in memory of Jenny.

Surian Tamsitt presenting cheque to Clive Hudson, Chair MNDA East Kent

This culminated in Mid-April with the presentation of a cheque for £1,100.00 to MNDA East Kent to be used for the support of people living with MND in East Kent.

Members of Beyond the Valley Travel at the cheque presentation.

MNDA East Kent would like to thank David, Surian and all the members of Beyond the Valley Travel for their generosity.  Huge thanks to you all. fff

3rd Coastal Walk to D’Feet MND May 18th 2019

We will be holding our third Coastal Walk to D’Feet MND on Saturday May 18th 2019.There will be three walks, the first  from Whitstable to Broadstairs , the second  from Birchington Minnis Bay to Broadstairs and the third from Margate to Broadstairs.  All will end with refreshments at The Wrotham Arms, Ramsgate Road, Broadstairs.There is an entrance fee of  £10 which includes a tee shirt (collected on the day), training program, detailed plan of walk, and full insurance.  Only registered walkers can walk and they must wear the tee shirt for insurance purposes.Each walker is requested  to find sponsorship to support people living with MND in East Kent.  There is no obligation to raise sponsorship but all support is greatly appreciated.To register for the walk, please visit www.mnda-eastkent.org.uk/walk2019 , complete the form, then follow the link to Just Giving to pay your entry fee of £10. If you intend to set up your own JustGiving page, we are happy for you to do so. Please select MNDA as your charity and then please mention MNDA East Kent in your story to ensure that funds you raise are used for people living with MND in East Kent.  Once you have set up your JustGiving Page, please link it to our team at www.justgiving.com/teams/coastalwalk2019/join  so we can keep track of the total funds we raise.If you want to make a donation in support but not register please visit our Donations PageShould you experience any difficulties please email webmaster@mnda-eastkent.org.uk

The route is shown on the map above. Training programs for the walks, the Walk Plan, sponsorship forms, posters and flyers can be downloaded below:

24 mile walk training programme download PDF

11 mile walk training programme download PDF

Walking Route and Plan download PDF

Sponsorship Form download

Poster download

We  thank our sponsors, with whose help we are able to raise substantial sums to help people living with MND in East Kent.