Category Archives: Fund Raising

AGM July 8th 2017

On Friday evening when we arrived at the hotel,  we had the opportunity to meet with some trustees and members of other groups, which was helpful in identifying some new ideas to work towards improving our activities in East Kent.

Saturday started with a short welcome speech by Alun Owen Chair of the Trustees of the Association.

Sally light then spoke of what we had achieved in 2016 and how we can help.  She used 2 excellent graphics for this and these are reproduced below.  These present the gist of her speech much better than any words.

Chris James spoke about the Association’s in complementing statuary services, collaborative working and the MND Costs Campaign.

Steve Bell spoke about the “What You Should Expect” an excellent small booklet giving brief details of what a pwMND should expect from the NICE Guidelines on MND and the Audit Tool to help assess how various bodies are doing in compliance with the guidalines.

We broke into groups which covered subjects like money for nothing fund raising, care update, the journey from awareness to action and local and regional finance.

We broke for lunch and the opportunity to look around the various stalls, we were particularly impressed by REMAP, a charity which makes custom made equipment to help disabled people live more independent lives.  Please visit

The AGM followed, during which our own Katy Styles was elected as a Trustee and Richard Coleman was elected as Chair of the Trustees.

The keynote speech was  delivered by Professor Ammar Al-Chalabi.  This speech was one of the most impressive I have ever been present at and I recommend everyone to look at it here click the link to MNDA Research under All Videos.

Murder Mystery at Tenterden raises over £3000

On June 30th Wealden Business Group hosted a Murder Mystery Evening at Little Silver Country Hotel in Tenterden.  The case was The Curse of the Willoughby Diamond.

The evening started with champagne as we were shown to our tables, we were hosted on a table by local members who were excellent company.

We enjoyed an excellent 3 course meal to die for!!   During the meal the actors presenting the murder mystery developed the plot of the murder and murder was indeed committed.

Peta Ashby centre with winners Gary and Clair Bodie

We were then invited to use our sleuthing skills to question the cast to see if we could identify the guilty party.  Our table asked some interesting questions, however we did not fine the killer.

The murderer was eventually declared and everyone in the room was a bit surprised but less so after being given the details of the crime.

There were several very good 1920 costumes, the winners Gary and Clair Bodie were chosen by a panel who were judging for the best couple, which was unfortunate for one girl on our table who was dazzling in a 20’s outfit, however her partner was not in period dress, so could not win.

The evening ended with an announcement that Murder Mystery had raised over £3000 for the Moor Neurone Disease Association in East Kent.

Rollin’ for Rawlins Bike Ride

John Rawlins

40 Mile bike ride in Support of John’s Journey, Raising funds for John and Motor Neurone Disease Association. Starting at the Margate Harbour Arm but with no more than 10 miles between beer breaks (other drinks are available). via Reculver, Preston, Sandwich, and back around the coast finishing at the Lighthouse Bar Margate Harbour Arm where a BBQ will be available and live bands. All welcome! Full details and route map will be posted soon. Sponsorship form can be downloaded as a jpeg in photos and printed.

Please share this event with your friends to raise awareness and get as many riders as possible!

More Information                    John’s Journey donations  Link

Dragon Boat Race 2nd July 2017

MNDA East Kent has entered a team into the Dragon Boat Race at Mote Park Maidstone on July 2nd 2017.

Our team will comprise of up to 17 members and will row at least 3 x 1000 metre races.  If you are interested in joining us please contact

We will also be holding a support picnic for our members who we hope will turn out to support us and enjoy a great picnic in we hope, glorious weather.

We hope to raise some funds from this day out and ask anyone who wishes to support our efforts to visit and donate what you can.  Huge thanks from the MNDA East Kent  Dragon Boat Team.

A fierce looking Dragon Boat Team with Sally Light

Charity Fun Day in memory of Dave Comber

A great day out is promised on Sunday 25th June, at the Meridian Sports Club, Charlton Park Lane, Charlton, London, SE7 8QS, starting at 10.00.

There is a five a side football tournament, and Raffles with great prizes, as well as hot and cold food stalls, a licensed bar, face painting and much more.

Please come along and support this event which is raising funds for MNDA.  If you are unable to come along and want to donate please visit  and donate what you can.

Thank you.

Choral Concert – Canterbury 18th June

A Choral Concert will be held at the Clagett Auditorium, Canterbury Cathedral Lodge on Sunday 18th June 2017 at 3pm. The bar will be open from 2.30pm.

Canterbury Ladies’ Choir

The concert will feature performances by Canterbury Girls’ Choir, Canterbury Ladies’ Choir and Canterbury Voices under the direction of Kerry Boyle.

The choirs will be presenting a programme of solos, duets, trios and choral pieces in a broad range of repertoire from Mozart to Mary Lynn Lightfoot and folk songs to Disney.

Tickets are now available from our website at or by email from . Price is £10 per ticket or 6 for £50.

All proceeds from the concert will be used to support people living with MND in East Kent.

Thank you for your support



Open Garden Stourmouth

Joan Whitehead has kindly agreed to open her garden in Stourmouth to the public to raise funds for the Motor Neurone Disease Association in East Kent.

Joan’s beautiful garden is a treat throughout the year and we are delighted to be able to ask friends and supporters to join us on Sunday 4th June 11am – 5pm.

The address is Ivy House, The Street, Stourmouth, CANTERBURY, CT3 1HY, parking is along the road or in the Rising Sun car park.


Entry fee of  £5.00 . Teas and cake will be available.  We look forward to an enjoyable day.

See views of?Joan’s beautiful garden below.



KM Big Quiz – Canterbury

The KM Charity Group big Quiz in Canterbury will be held on Friday 21st April.

MNDA East Kent have 2 teams of 8 entered and hope to be able to field a 3rd team.? If you are interested in joining us please email

Entry costs ?7 per head and includes wine and substantial nibbles.? You are free to bring extra food, but all additional drinks must be purchased at the venue.

Where: University of Kent Sports Centre, Canterbury, CT2 7NL.

When:??7pm on Friday 21st?April 2017. Doors open 6.20pm.

As Kentish Gazette Charity of the Year 2017, we will be a beneficiary and we are looking to have a good turnout to support the KM Charity Group in this project.