Category Archives: Uncategorized

Support Meeting Tea at Strode Park Foundation

We were invited on Sunday August 6th to visit Strode Park Foundation for tea and a walk around parts of the house and the grounds.

There were 12 of us attending and we enjoyed a fabulous tea of sandwiches, scones with jam and clotted cream and a selection of cakes.

John Cotterill addressing our group.

The sandwiches, scones and cakes were prepared at Strode Park by ??, all were beautifully fresh and delicious.  The tea was served by Anthony who thoroughly spoiled us.

We were shown around the grounds, Daren found a lake with a no fishing sign, which indicated to him there would be something worth catching.

The open air auditorium is a fantastic facility with every part accessible by wheelchair, we were invited to look at the website Strodeparkfoundation.co.uk to find out about concerts and booking them if we wished.

We were shown around non residential parts of the house, including the gymnasium and the hydro therapy pool, which is available to people living with disabilities including MND.

Daren looked up to catch this image of our group – most of us missed it!!

Huge thanks to John Cotterill who showed us around and to ?? and Anthony for making the tea so special.

We have been invited to have tea at Strode Park at some future date and we are welcome to attend any public events held at the Foundation.

 

 

Coastal Walk To D’Feet MND raises over £9000.

A coastal walk was held on 20th May to raise funds for MNDA in East Kent.

The walk started in Whitstable at 07.00 with 21 walkers turning up to register for the 25 mile walk.  These walkers walked some 12miles along the beautiful East Kent coast in glorious sunshine until they reached Minnis Bay, Birchington.

Starters from Whitstable

The walkers were joined at Minnis Bay by another 46 walkers registered to walk 13 miles, all 67 walkers then set out to walk to Ramsgate, along the Kent Coast, through Westgate and Margate to The Botany Bay Hotel.

Some starters from Minnis Bay

At The Botany Bay Hotel the walkers were joined by the final group of 16 walkers registered to walk 5 miles to Ramsgate.  All 83 walkers now walked though Broadstairs and on into Ramsgate, where the walk ended at the Churchill Tavern, who laid on light refreshments  for walkers and supporters.

All walkers who finished were given a medallion for completing the inaugural Coastal Walk To D’Feet MND.  Adrian Powell Made a short speech  to the walkers thanking them for making the day very enjoyable and for raising funds for MNDA in East Kent.

We did it!!

The walk was conceived by Cath Miller, who formed a committee of Steve Miller, Adrian Powell, Lynne Paine, Dawn Smith, Ayesha Powell and Clive Hudson.  The committee planned the whole event and executed the walk with the help of several volunteers who manned registration, acted as marshals, collected cash and put up signage.

Huge thanks to all the walkers and their sponsors, who enable us to raise £9,064.88 including gift aid.

Special thanks to

  • Dawn Smith for sponsoring the medals.
  • Ian Pettman – Premier Signs for sponsoring the signage.

Diary Date for 2018 – the Coastal Walk to D’Feet MND will take place on Sunday May 20th.

 

Choral Concert

Sunday 18th June saw the Canterbury Vocals combined choirs and soloists come together to raise funds and awareness of motor neurone disease. The choirs were the Canterbury Ladies’ Choir, Canterbury Girls’ Choir and The Canterbury Voices.  

The event took place at The Clagett Auditorium at Canterbury Cathedral Lodge on the hottest day of the year. 

The three choirs performed a variety of pieces from ballads, opera pieces and humorous pieces. 

Judy Keay, choir member and East Kent MND Association Group Committee Member, explained about motor neurone disease and the work of the Association to the audience which included the Lord Mayor of Canterbury, Councillor Rosemary Doyle and the Lady Mayoress, Jenny Yonge. 

The choirs performed brilliantly despite the soaring temperatures and a very enjoyable time was had by all.

Spike is no ordinary cat.

Spike

This month he has been raising awareness of MND and Kennedy’s Disease as he is a finalist in the National Cat of the Year. He is in the Better Together category where it is all about how he and his owner, Mark Styles look out for each other.  

http://www.itv.com/news/meridian/update/2017-06-07/why-is-this-loyal-feline-friend-up-for-a-national-award/ 

Spike, a 17 year old ginger and white moggy has been in the local paper -the Kentish Gazette, videoed and photographed by Cats Protection and on the local news programme – Meridian. 

Spike’s category is one which is decided by a public vote, so if you would like to vote for him after 30th June go to the www.facebook.com/catsprotection 

Winners will be announced on 3rd August at the Savoy, London.

 

 

Consultation: Government?s Work, Health and Disability Green Paper?

The Association has been working on the Government?s major discussion paper?outlining their ideas for getting disabled and people with long-term conditions into work. People living with MND and those affected by it have been surveyed for their views on the proposals. 144 people responded to the MND Association?s survey.

Alongside this there have been two engagement events organised by the Department for Work and Pensions (DWP) and the Disability Benefits Consortium (DBC) of which the Association is a member. One was for the policy staff at the Association and Mark and I attended on behalf of people with lived experience. We were able to discuss with civil servants directly and discuss and challenge their thinking.

The Association will be submitting a response by 17th February. This will be on the main Association?s website.

2016 in review.

2016 has been an interesting and successful year for MND Association East Kent Group.

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Campaigns Contact volunteers Greg Broadhurst (Manchester Branch), Colin Hardy (Northumberland Group), David Setters (East Surrey Branch) and Katy Styles (East Kent Group) were joined by Helen Setters and Mark Styles at the lobby.

The year started with a party at the Wrotham Arms in Broadstairs, followed in very short order by a Support meeting in Folkestone and a visit to Westminster where 6 people affected by MND addressed some 42 Parliamentarians.

Young Carers Awareness Day was also in January, which was followed by the Burns Night Supper at BinElla in Faversham.

Mark and Katy Styles spoke to the Psychology Society at the University of Kent on Tuesday 23rd February.

Campaigning Toolkit

 

During April The Campaigning Toolkit, the brainchild of East Kent’s?Katy Styles was launched, A Masquerade Dinner in Tenterden raised almost ?10,000 and the?South Coast Road?Trip tee shirts went on sale, together with announcements of the events in East Kent.

A brilliant Spring Lunch was held in May and the press release for the South Coast Road Trip was sent to all media outlets.

June was the month of the South Coast Road Trip with 19 events in 17 days as Clive and Lynn Hudson travelled by public buses from Broadstairs to Land’s End, raising over ?10,000 and also creating great awareness of MND in the process.

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Sally Light with Signed T Shirt
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Herne Bay Clock Tower

The Clock Tower in Herne Bay was lit up with MND colours and MND awareness day and The Podplus 5K run was yet again a success was a successful run raising funds for MND in East Kent.

Campaigning were busy at Parliament for a Carer’s Week Reception representing pwMND and their carers.

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Daren with enormous carp

In August Summer was in the air with great music at the Broadstairs Summer Hop at The Pavilion, which followed on into the evening at the Wrotham Arms.? Daren Edwards was catching enormous fish in France and the signed road trip shirt went on display at David Niven House.

Katy Styles addressed The National Council for Voluntary Organisations (NCVO)? Campaigning Conference on September 3rd, being the only volunteer to address the meeting.? On the same day Judy Keay attended Project Respect, which?is the MND Association?s Equality, Diversity and Inclusion Strategy ? and?all members are encouraged to help shape it.

Clive Hudson, Mark? and Katy Styles attended the annual conference of the MND Association held in Derby on Saturday 10th September.? Please see http://mnda-eastkent.org.uk/wordpress/?p=1849 for full details.

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Anne Pomeroy

Anne Pomeroy walked 100KM along the Thames raising ?1650.93 for MND Association East Kent.

The Co-op run from River to Mill Hill was on 30th September.? The run followed the diagnosis of MND given to local lady Linda Clarke.? The run raised over ?1000 for MND. See http://mnda-eastkent.org.uk/wordpress/?p=1876 for more information.

We held a volunteer recruitment day in Canterbury in early October, the event was an interesting experience and we learned much about how to present any future recruitment day. Unfortunately it was a foul day and we were not successful in gaining any new volunteers.

Judy Keay, Chrissie Batts and Mark and Katy Styles attended a Parliamentary Reception on October 18th, representing the East Kent Group.

Katy Styles, Mark Styles, Julian Brazier MP, Chrissie Batts & Judy Keay
Katy Styles, Mark Styles, Julian Brazier MP, Chrissie Batts & Judy Keay

They all spoke with?Julian Brazier, MP for Canterbury and Whitstable who attended and promised to follow up the points made at the reception, and other MP’s at the reception. ?Mark and Katy also spoke to the Minister, Penny Mordaunt about their concerns .

During November we were encouraging people to complete a survey about the financial impact of MND further information http://mnda-eastkent.org.uk/wordpress/?p=1898

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Christmas Lunch

Our year ended by funding the installation of a hoist for Martin living with MND, making a contribution to our CEO annual appeal and enjoying a wonderful Christmas Lunch at Yarrow Hotel in Broadstairs.

 

 

 

Apologies for any errors or omissions please contact webmaster@mnda-eastkent.org.uk

 

A Fishy Tale

MND Association East Kent member Daren Edwards who lives with MND, is a keen fisherman and regularly visits France seeking to catch large carp.

On his most recent visit he caught the beauty shown below in a lake in the Champagne Region, it is a mirror carp and weighed in at 32 pounds and took over 20 minutes to land.

For those who appreciate the finer points of fishing, it was using a 15lb mainline with 3 Tiger Nuts as bait.? The temperature was 28C, difficult conditions but Darren had a great time.

DarrenwithCarp

Daren would like to thank MND Association for the financial contribution towards his holiday trip.

CO-OP Charity Run 30th September

Several staff members of The?Co-Op are running to raise funds for MND Association on 30th September.? They will be running from the Co-Op in River starting at 9.30 am, to the?Co-Op in Mill Hill, a distance of roughly 10 miles.? They are expected to arrive in Mill Hill around 11.15am.

Well wishers are welcome at either Co-Op to cheer them on.

LindaClarkeSm

You can support this wonderful fund raising event by visiting this Just Giving Page?and making a donation.